31 Letters to the New Mom of a Child with Spina Bifida
Day 10: Listen to your Instincts and Press for Results: 3rd Post in the series-Being your
Child’s Advocate
Dear Momma,
When we brought Jaycie home from the hospital in November, I
was terrified. I worried that we wouldn’t
know what to do if her shunt malfunctioned.
For us it wasn’t long before we were faced with that situation. The week after Christmas, I noticed she was
more sleepy than usual and wasn’t really herself. I also noticed that her tubing from her shunt
appeared to be more noticeable and looked like a question mark under her skin
on the back of her head. I