Showing posts with label hydrocephalus. Show all posts
Showing posts with label hydrocephalus. Show all posts

Saturday, October 27, 2012

Day 10: Listen to your Instincts and Press for Results


31 Letters to the New Mom of a Child with Spina Bifida
Day 10: Listen to your Instincts and Press for Results:  3rd Post in the series-Being your Child’s Advocate

Dear Momma,

When we brought Jaycie home from the hospital in November, I was terrified.  I worried that we wouldn’t know what to do if her shunt malfunctioned.  For us it wasn’t long before we were faced with that situation.  The week after Christmas, I noticed she was more sleepy than usual and wasn’t really herself.  I also noticed that her tubing from her shunt appeared to be more noticeable and looked like a question mark under her skin on the back of her head.  I

Wednesday, October 3, 2012

31 Letters to the New Mom of a child with Spina Bifida Day 1: Getting the News


Day 1:  Getting the News

Dear Momma,

I remember the day that I received the call from the doctor’s office.  It was a voicemail to be exact and the nurse said, “There were some concerns with your blood work and we are going to refer you to another clinic for further evaluation.  Please call the office on Monday morning to schedule an appointment to speak to the doctor.”